So I finally got to meet Dakota, a fellow Familial Adenomatous Polyposis(FAP)/DesmoidTumor patient. She is the first in her family to be diagnosed, like my dad was. I’ve been wanting to meet her for the past couple years. Finally it happened. Much wonderful conversation ensued. Dakota runs a YouTube channel dedicated to all aspects of FAP and Desmoids. She is such an intelligent and enlightened woman. Great things are coming from this one. Thank you for meeting me Dakota, it truly meant the world to me. Here is a link to her YouTube channel. Seriously great stuff. 

See for yourself: http://www.youtube.com/FAPulousTV