DESMOID TUMORS

HAYLEY. FAP/DESMOID TUMOR. DIAGNOSED AT 37. ENGLAND.

All this started when I was only the age of 15 and my father passed away at the age of 43, my aunt was told that there was hereditary colon cancer in the family and that it would only affect the men so unfortunately I was never tested. In May of 2012 I had enough of...

FELICIA. FAP/DESMOID TUMOR. DIAGNOSED AT 17. TEXAS.

My name is Felicia Wagner.  I am 27 years old, but was diagnosed with Gardner Syndrome/FAP when I was 17 years old.  I was born and raised in Des Moines, IA.  I knew I had it prior to my diagnosis, because my father, who was the carrier, saw the physical symptoms...

REANNA. DESMOID TUMOR. DIAGNOSED AT 35. AUSTRALIA.

Hi, I'm Reanna from South Australia. I am 36. My Desmoid Tumor story is like most. In 2011 I started getting rheumatoid arthritis in my hands, I believe this was the earliest warning sign that I was not so well inside. Winter 2012 came and I could not shake a cold for...

MAJELLA. DESMOID TUMORS. DIAGNOSED AT 13. IRELAND.

My Journey of hope! My name is Majella, and I’m from Ireland. My childhood was filled with strange sickness including deafness, which thankfully is cured. I grew up in a normal Irish country family. I have one brother and no sisters. When I was 13 years old, I...

JULIE ANNE. DESMOID TUMORS. DIAGNOSED AT 47. ALBERTA.

I had just started working out again and was having some discomfort in my groin area when doing workouts. Was just massaging my leg when I discovered a lump or what I thought was a lump. Was going to my family doctor for my yearly physical when as an afterthought,...

RACHAEL. DESMOID TUMORS. DIAGNOSED AT 33. AUSTRALIA.

It was just before Christmas 2009. I had been hospitalised with pneumonia for a week. I had lost a lot of weight due to being so ill. The day I was discharged from hospital I was just walking through my house and I put my hands on my hips. There I felt it…the lump...

MICHELLE. DESMOID TUMORS. DIAGNOSED AT 27. UNITED KINGDOM.

Hi my name is Michelle. I'm 44 I come fro Tredegar South Wales, UK. It was just over 16 years ago and I was 39 weeks into my pregnancy with my 3rd child. Was very excited, as it was a boy as we lost our second child to cot death two years before. I went for a check up...