FAMILIAL ADENOMATOUS POLYPOSIS (FAP)

These are the portraits and stories of survivors of familial adenomatous polyposis (FAP),  a hereditary condition that in 100% of cases will turn to colon cancer if not detected and treated in time. I hope that sharing the stories of these survivors will help others to better understand the experience of living with FAP and give encouragement and hope to other survivors.

As with most other rare genetic diseases, the majority of patients never meet another person with the disease and sharing stories publicly and having an online community is essential to survivorship. We hope that sharing the stories of these survivors will help others to better understand the experience of living with FAP and give encouragement and hope to other survivors.

CARREEN. FAP/GARDNER’S SYNDROME.DIAGNOSED AT 12. COLORADO.

I was 4 days old in July, 1980 when my adoptive parents picked me up at the hospital in Salt Lake City and brought me home. They had gone through an attorney for a private, closed adoption and knew next to nothing about my family history. When I was approximately 17...

KIM. FAP. DIAGNOSED AT 13. ILLINOIS.

Little did I know my dad’s announcement would alter my life so much.  When I was five years old my father was diagnosed with Familial Adenomatous Polyposis (FAP). After being diagnosed with FAP, my dad had surgery for a colectomy.  They took biopsies from several...