OFF THE MAP

This would be the place where colorectal cancer, FAP and desmoid tumor survivors from outside the United States can share their face photos and survivorship stories. Because after all, americans aren’t the only ones who have these diseases. Also, this would be the place for survivors within the US who I’ve not yet photographed, to share their faces and survivorship stories.

Imagine it, hundreds of survivor faces and stories from every corner of this planet of ours. Talk about an incredible way to show how these diseases affect people in mass quantities from nnnumerous worldly locations.

All you colorectal cancer, FAP and desmoid tumor survivors who are located outside the United States or survivors who reside within the United States who I have not yet been able to meet with in person, send your face photos and survivorship stories to yo@destinationxride.org. Be sure to include your name, which of the three above diseases you have, age you were diagnosed and country you reside in. And commence with the story telling. 

I vvvery much look forward to receiving all your faces and stories for  OFF THE MAP.

ANITA. STAGE 3 RECTAL CANCER. DIAGNOSED AT 38. AUSTRALIA.

I was diagnosed with rectal cancer the day before my 39th birthday. With no family history at all, so to say it was a shock is an understatement. I had been feeling unwell for the 2 months prior to diagnosis having lost 6kg and noticing a change in my bowel habit....

SHELLEY. STAGE 3 COLON CANCER. DIAGNOSED AT 29. MICHIGAN.

Tonight is so different then seven years ago. Tonight, I am sitting with this sweet baby in my lap, smooching his soft head, rubbing my lips on his forehead, savoring this miracle baby, seven years ago, I nearly lost my life. Ah, so very different indeed. Maybe this...

HAYLEY. FAP/DESMOID TUMOR. DIAGNOSED AT 37. ENGLAND.

All this started when I was only the age of 15 and my father passed away at the age of 43, my aunt was told that there was hereditary colon cancer in the family and that it would only affect the men so unfortunately I was never tested. In May of 2012 I had enough of...

KIMBERLY. STAGE 3 RECTAL CANCER. DIAGNOSED AT 34. FLORIDA.

I was diagnosed with stage III rectal cancer in February 2007, at age 34.  I was young, fit, healthy in every way, and it came out of nowhere and blew my world apart.  Despite it all, I just celebrated my seventh survivor anniversary (2014) and am here to tell the...

DARRELL. FAP/STAGE 3 COLON CANCER. DIAGNOSED AT 43. OKLAHOMA.

My family has no history of colon cancer and I'd never heard of FAP so it came as quite a surprise to me when I was diagnosed with both last spring. In April of last year I went to the Choctaw Health Center in Talihina, Oklahoma, because I was passing blood. Quite a...

JENNY. FAP. DIAGNOSED AT 8. OKLAHOMA.

I was diagnosed with classic Familial Adenomatous Polyposis (FAP) around the age of 8. My mother, grandfather and likely some of his siblings were also FAPers. I didn't really understand what that meant until I was diagnosed. Before that I knew what an ostomy was and...

MONICA. FAP. DIAGNOSED AT 15. TEXAS.

The summer of 1988 – I was 15 and that was when my battle with Familial Adenomatous Polyposis (FAP) began. And for me, it has been a long, hard battle. My father died of colon cancer when he was in his mid-30s. I’m not sure of the details because he and my mother...

SCOTT. FAP. DIAGNOSED AT 22. SCOTLAND.

This is my story. I was diagnosed at the age of 22. My only symptom at the time being some blood in my stool. There are no other family members who have FAP, I am the first link in the chain, so you can imagine I was really terrified when I got the news, fearing that...

FELICIA. FAP/DESMOID TUMOR. DIAGNOSED AT 17. TEXAS.

My name is Felicia Wagner.  I am 27 years old, but was diagnosed with Gardner Syndrome/FAP when I was 17 years old.  I was born and raised in Des Moines, IA.  I knew I had it prior to my diagnosis, because my father, who was the carrier, saw the physical symptoms...

REANNA. DESMOID TUMOR. DIAGNOSED AT 35. AUSTRALIA.

Hi, I'm Reanna from South Australia. I am 36. My Desmoid Tumor story is like most. In 2011 I started getting rheumatoid arthritis in my hands, I believe this was the earliest warning sign that I was not so well inside. Winter 2012 came and I could not shake a cold for...

MAJELLA. DESMOID TUMORS. DIAGNOSED AT 13. IRELAND.

My Journey of hope! My name is Majella, and I’m from Ireland. My childhood was filled with strange sickness including deafness, which thankfully is cured. I grew up in a normal Irish country family. I have one brother and no sisters. When I was 13 years old, I...

JULIE ANNE. DESMOID TUMORS. DIAGNOSED AT 47. ALBERTA.

I had just started working out again and was having some discomfort in my groin area when doing workouts. Was just massaging my leg when I discovered a lump or what I thought was a lump. Was going to my family doctor for my yearly physical when as an afterthought,...