ED. STAGE 4 COLORECTAL CANCER. DIAGNOSED AT 30. NEW JERSEY.

ED. STAGE 4 COLORECTAL CANCER. DIAGNOSED AT 30. NEW JERSEY.

Before cancer

Before cancer I was married, had a career, a house, and very athletic. I felt like I was going in a great direction and couldn’t wait to see where life was taking me.  I was getting ready to turn 30 and started to have issues with constipation and diarrhea. I didn’t know what to think just thought maybe something I had been eating wasn’t agreeing with me.  As the symptoms got worse I was persistent on getting checked so I could fix what was wrong and go about living my life like a normal 30 year old. After getting numerous tests done I was in shock to find out that I had a 3 inch tumor in my colon. From that day on my life changed forever. 

During cancer

On December 29th2008 I started Chemo and radiation. During this time I went through many different struggles.  I was barely eating or going to the bathroom for a few months the physical and mental pain I went through at that time was draining on me and my family.  In the middle of all of this craziness I found out the cancer had spread to my liver. It was time to get my bowel reception done and I was told I would get ileostomy bag put on for three months during recovery. During my follow up session I had a lot of questions about my ileostomy bag. That was until he broke the news to me that my diagnosis was worse than previously diagnosed.  The cancer was in my blood and lymph nodes and I had to go in for 6 months of aggressive chemo. During this rough treatment I also had to have surgery on my liver to remove the tumor. After liver surgery I finished my chemo therapy and found out I was cancer free and it was time to get my ileostomy reversed. I couldn’t wait to get my life back and heal from all the pain and trauma I went through in the last year.

After cancer

While healing from my reversal I felt like something was not right. I was concerned and contacted my doctor; he thought that it was just my body healing and that everything was going to be OK. Fast forward 5 months later I was still having the sweats, pain, and sickness. I found out that I had an abscessed infection where my bowel reception surgery was. The only way my doctor knew how to heal the infection was putting a colostomy bag on me.  As if it was not hard enough to get a bag put back on after everything I went through I found out that my infection was in my blood and I was sent to an infectious disease doctor to help it heal. The infection healed after 3 weeks and I finally felt healthy for the most part but now I was stuck with my colostomy bag on and wasn’t sure if I would ever be able to get it reversed again.

Struggles I went through

I felt like being cancer free and infection free should have been the happiest moment in my life. However, I couldn’t have felt more alone, depressed and confused than ever before. I had a constant reminder of the struggle I had gone through and even though I was alive I was filled with so much hate. I had to start to pick up the pieces in my life, but didn’t know where to start and had no one that helped guide me in that direction. After a year and a half of being told what to constantly do to help me get better under the careful eyes of my physicians I was told to go start living my life again, but I still hadn’t come to terms with all the trauma I just went through. My life was in shambles I was out drinking heavily at least four times a week, my marriage and relationships with friends were starting to deteriorate. I was in the darkest point of my life and I didn’t even realize it. It wasn’t until I started to seek help from a therapist and finding support groups like colon town to help my journey to recovery start to take place. But the turning point in my life was getting involved in my first run/walk for the undy5000. I am still going through struggles as we speak even though I just hit 5 years in remission, my CEA levels continue to stay high and my doctors don’t have an explanation for it. I just try and stay positive as I can and hope that I continue to remain in remission.

Things that would have helped

I wish that my physicians or the professionals that I was surrounded by my entire treatment could have given me some insight on what resources are out there for colon cancer or ostomies and how important it is to get involved. Just remember every day may not be good, but there is something good in every day.

 

Skills

Posted on

December 15, 2014

2 Comments

  1. Michael

    Hi. not sure how you recruit folks for your project. I was diagnosed with stage 3b rectal cancer at age 43 in 2012. Crazy how the disease is skewing younger and younger.

    Reply
    • TED

      Hello Michael. Much thanx for your comment and interest in the project. Anybody diagnosed with colorectal cancer under the age of 50 is very much encouraged to participate in the 500UNDER50BEFORE50 project. I just need to be able to get to the survivors to so I can photograph you all. Perhaps you can email me at yo@destinationxride.org so we can talk in greater detail. Again, thank you for making contact. I look forward to your email.

      Absolute best,

      Todd.

      Reply

Submit a Comment

Your email address will not be published. Required fields are marked *

CommentLuv badge