CANCERNET (ONCOLOGIST APPROVED INFORMATION FROM THE AMERICAN SOCIETY OF CLINICAL ONCOLOGY):

http://www.cancer.net/cancer-types/familial-adenomatous-polyposis

THE CLEVELAND CLINIC, A LEADING HOSPITAL IN THE DIAGNOSIS AND TREATMENT OF FAP AND COLORECTAL CANCERS:

http://my.clevelandclinic.org/disorders/inherited_colon_cancer/dd_fap.aspx 

THE CLEVELAND CLINIC MAINTAINS A CONFIDENTIAL REGISTRY OF FAP AND COLON CANCER PATIENTS INFORMATION, AIDING IN RESEARCH TO HELP FIND BETTER TREATMENTS AND A CURE. WE STRONGLY ENCOURAGE ANYONE WHO QUALIFIES TO PARTICIPATE:

http://my.clevelandclinic.org/disorders/colorectal_cancer/dd_registeries.aspx

MD ANDERSON CANCER HOSPITAL:

http://www2.mdanderson.org/app/pe/index.cfm?pageName=opendoc&docid=1032