I found out that I had FAP when I was 7 months pregnant with my first child. I put off scans and surgery for a few years.  I became a great procrastinator. But just because I ignored my disease, didn’t mean my disease ignored me.

Fast forward 11 years… a lot has happened, but I am currently doing great. My focus now is on my two boys. I had them tested when they were 1 and 5 years old. And as luck, or lack there of, would have it, they too have FAP. I have been diligent in their health and monitor them almost obsessively. This summer my son is facing his second colonoscopy. He was very brave last year, forcing down the Miralax milkshake over the course of 3 days. As a parent you want to protect your children, so sitting by and watching helplessly as he runs to the bathroom for the umpteenth time breaks my heart.

Last year his scan showed one polyp. Not bad, but I was praying for none. Now we face another scan. I pray again for no polyps, but I know that’s all I can do. Watch and pray, helpless to protect my children.

My younger son has 4 more years before he needs to be scanned. Until then my worries remain on my older son. But what I can do is be strong. I try to show my sons that, although things can be tough, we are tougher. There’s still so much to be thankful for, and for all the hurdles we conquer, we become stronger still. That’s all I can do, and I hope it’s enough.