Parking lot posing with fellow Familial Adenomatous Polyposis/FAP patient Kristofer. He was diagnosed with FAP, stage 3 colorectal cancer and a Desmoid tumor at age 18. He is 18 years past his colorectal cancer diagnosis, but is still very much having to deal with all aspects of FAP. ie. ileostomy, the aftermath of a Whipple procedure (one of the most invasive surgeries out there) and the issues that come post chemo and radiation. It’s thought by some that once you remove the colon that all’s good with FAP. So not the case. Do a little research and see. FAP is a life sentence of sorts. It’s not just about the colon. Kristofer, thank you so much for your time and interest in what I’m doing. Means the world.

Too read more about Kristofer’s story, check out his blog: