While on the ride, I will be putting my background in photography to use by capturing the portraits and gathering the stories of colorectal cancer, FAP and desmoid tumor survivors for the FACEiT PROJECT. These photos and stories will be continuously added to the PROJECT. With rare diseases like FAP and desmoids, many patients never have an opportunity to meet even one other person with the same diagnosis, and sharing survivorship stories online is a critical way for patients to connect and share hope.

AMY. STAGE 1 COLON CANCER/FAP. DIAGNOSED AT 23. MARYLAND.

“I doubt it is polyps, because of your age.”  This is what the general surgeon told me when I went in for a consultation for rectal bleeding at 22.  I’d had symptoms for some time; at 16, the doctor suggested it was Irritable Bowel Syndrome and prescribed me some...

ANNA. STAGE 4 COLORECTAL CANCER. DIAGNOSED AT 38. CONNECTICUT.

I am mom of two children here... 11 yr old daughter, 9 yr old son... My first daughter would be 12 now but she passed away as an infant at 2 days old from a GBM… Glioblastoma multiforme… Massive brain tumor in her front lobe... My little Angel Sage Cathryn. Well the...

JOVANNIE. STAGE 2 COLON CANCER. DIAGNOSED AT 32. NEW JERSEY.

When Jovannie Lorenzo was diagnosed with colon cancer at the age of 32 in 2012, it was a devastating shock. She had been experiencing symptoms for months – low energy, pain and swelling on her side, losing weight – but as a single mother of three, she kept telling...

RACHEL. STAGE 3 COLON CANCER. DIAGNOSED AT 39. PHILADELPIA.

In August of 2013, my appendix ruptured.  Unlike the usual story where a person hunches over in pain and runs to the ER, I had no idea this happened to me at the time.  I thought I had food poisoning and then later a flu of some sorts.  After three weeks of...

ROSE. STAGE 3 COLON CANCER. DIAGNOSED AT 34. PENNSYLVANIA.

Not long after our family celebrated my daughter’s first birthday in April 2010, did my one and only symptom appear. I began to notice, sporadically and infrequently, some blood in my stool. I initially chalked it to an internal hemorrhoid, since I always heard that...

ROBERT. STAGE 3B COLON CANCER. DIAGNOSED AT 15. NORTH CAROLINA.

My name is Wendy and my son, Robert, is now 16 years old and faced his second malignancy last year. At three years old, he was diagnosed with Medulloblastoma (brain cancer) on February 24, 2000. He underwent chemo and radiation at Brenner Children's Hospital at Wake...

JIM. STAGE 4 COLON CANCER. DIAGNOSED AT 31. WISCONSIN.

On March 18th, 2013, I heard the three words everyone dreads. You have cancer. At the time I was a reasonably healthy, active 31 year old with a wife and two young boys. This diagnosis, which by the end of the week was confirmed to be stage IV colon cancer, came as a...

ASHLEE. FAP. DIAGNOSED AT 6. MARYLAND.

My name is Tiffany, and I'm sitting here next to my Ashlee. She is 7 years old and has Familial Adenomatous Polyposis (FAP)/Gardner’s Syndrome. We decided we would tell her story. Which, really is our story. Ashlee had a perfectly normal childhood up until age 5. In...