DAKOTA. FAP/DESMOID TUMOR. DIAGNOSED AT 22. PHILADELPHIA.

DAKOTA. FAP/DESMOID TUMOR. DIAGNOSED AT 22. PHILADELPHIA.

I played by the rules. I got good grades, graduated from an elite college, lined up a fantastic job, never drank more than a few sips of alcohol until I was legal, stayed away from drugs (including coffee’s caffeine), and volunteered in my communities. I ardently...
KIM. FAP. DIAGNOSED AT 13. ILLINOIS.

KIM. FAP. DIAGNOSED AT 13. ILLINOIS.

Little did I know my dad’s announcement would alter my life so much.  When I was five years old my father was diagnosed with Familial Adenomatous Polyposis (FAP). After being diagnosed with FAP, my dad had surgery for a colectomy.  They took biopsies from several...
CARREEN. FAP/GARDNER’S SYNDROME.DIAGNOSED AT 12. COLORADO.

CARREEN. FAP/GARDNER’S SYNDROME.DIAGNOSED AT 12. COLORADO.

I was 4 days old in July, 1980 when my adoptive parents picked me up at the hospital in Salt Lake City and brought me home. They had gone through an attorney for a private, closed adoption and knew next to nothing about my family history. When I was approximately 17...
MARK. STAGE 4 COLON CANCER/FAP. DIAGNOSED AT 38. COLORADO.

MARK. STAGE 4 COLON CANCER/FAP. DIAGNOSED AT 38. COLORADO.

My first personal experience with cancer began in the mid-1970s. My father, after mis-diagnosis for a bleeding ulcer, was diagnosed with colon cancer. After several touch-and-go surgeries and treatments, he survived his ordeals. It was during this time that we found...