Organizations, websites and resources that rock our world and we hope will rock yours too. This is by no means a comprehensive list, and we will continue to build this; these are just some of our top picks. We have also listed some links to groups with their own resource pages that are bursting at the seams. We highly recommend checking out the resources that they have compiled and recommend.
FIRST AND FOREMOST, RIDE PARTNERS:
CHRIS4LIFE COLON CANCER FOUNDATION SCOPE IT OUT 5K:
COLON CANCER ALLIANCE UNDY 5000 5K:
GET YOUR REAR IN GEAR 5K:
MORE GREAT STUFF:
FOR COLORECTAL CANCER:
Colon Cancer Prevention Project: http://www.coloncancerpreventionproject.org https://www.facebook.com/coloncancerprevention Fight Colorectal Cancer: http://fightcolorectalcancer.org/ https://www.facebook.com/FightCRC Meridith’s Miracles (financial assistance for colon cancer survivors under the age of 40): http://www.meredithsmiraclesfoundation.org/index.php?option=com_content&view=article&id=12&Itemid=8
Cleveland Clinic (FAP Patient Registry): http://my.clevelandclinic.org/disorders/inherited_colon_cancer/dd_fap.aspx
FOR DESMOID TUMORS:
The Desmodian (private facebook community for desmoid tumor survivors and loved ones): https://www.facebook.com/groups/thedesmoidian/ Genetics Home Reference (information on desmoid tumors): http://ghr.nlm.nih.gov/condition/desmoid-tumor The National Center for Biotechnology Information (information on desmoid tumors): http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3228186/
GENERAL CANCER ORGANIZATIONS:
American Cancer Society: http://www.cancer.org https://www.facebook.com/AmericanCancerSociety Blog for a Cure (online community of cancer survivor support): www.blogforacure.com/ CancerCare (general cancer support): http://www.cancercare.org Cancer Legal Resource Center: http://www.disabilityrightslegalcenter.org/cancer-legal-resource-center Caring Bridge (help managing caretaking and patient updates): http://www.caringbridge.org/ First Descents (free outdoor adventure camp for young adults with cancer, Mary Love was the first desmoid tumor patient to attend): http://firstdescents.org/ https://www.facebook.com/FDAdventure Food Tidings (help managing food deliveries for patients): http://www.foodtidings.com/ Immerman Angels (patient to patient support): http://www.imermanangels.org/ https://www.facebook.com/ImermanAngels Lots of Helping Hands (help managing visits and chores): http://www.lotsahelpinghands.com/ Reel Recovery (3-day fly fishing retreats for men with cancer): http://reelrecovery.org/ https://www.facebook.com/pages/Reel-Recovery/75227070548 SAM Fund (scholarships for young adults with cancer –one-stop-shop list of resources): http://www.thesamfund.org/resources-for-young-adult-survivors/
WHILE WE LIKE TO KEEP THINGS ADVENTUROUS AND VRRROOMING ALONG HERE, WE HOPE THAT YOU’LL BEAR WITH US AS WE ADDRESS THE NECESSARY LEGALESE.
DESTINATION X RIDE (DXR) recognizes the value of survivors and patients sharing information to help one another along their journeys. While we sincerely appreciate personal contributions, the information here is provided as a resource only and is not to be construed as medical advice. You should always discuss your treatment plan and any health concerns with your doctor. The opinions and recommendations contained in this website are not necessarily those of or endorsed by DXR. DXR disclaims responsibility and/or liability for any damages, loss, injury, illness or liability whatsoever suffered as a result of your reliance on the information contained in this site and does not endorse specifically any test, treatment, or procedure mentioned on the site. By visiting this site you agree to the foregoing terms and conditions. If you do not agree to the foregoing terms and conditions, you should not enter this site.